Miller Eason David was born at 9:48pm on April 17, 2012, weighing 8lbs 6.4oz, 20.5″ long. He was perfect! From day one Miller was curious and very alert, always checking out what was going on around him. He was a great eater and sleeper–sleeping through the night by 6 weeks old! Miller was a happy, sweet, EASY (and extremely easy-going) baby.
Then on July 29, 2012 it was discovered this sweet, handsome, curious and daring boy has a terrible genetic disease called SMA Type II.
There are 4 types of SMA, Type 1 being the most severe and Type 4 usually presenting in adulthood and not affecting life expectancy. Type 2, which is what Miller has, is typically diagnosed between 8 and 18 months. These babies usually appear healthy and meet all milestones on time until about the time of diagnosis or shortly before, at which time they present as weak and commonly have difficulty crawling or walking, and if they ever do walk, only do so for a short time.
SMA is a progressively degenerative disease eventually affecting all muscles of the body. Types 1 and 2 are most susceptible to eventual difficulty swallowing and breathing. SMA does not affect the brain at all, in fact most people with SMA are exceptionally bright and personable.
There are many stories of people of all types that have lived very long and productive lives. Miller is no exception to this possibility!
Read more at: https://gomillergo.wordpress.com/
Friends, Family, Advocates,
We want to express our deepest gratitude for your support in making this event such an incredible success! What started on the back of a napkin has turned into so much more due to your love, compassion and hard work. Here we share some memories and victories since this journey began in 2014.